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Wednesday 17 July 2019
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Further Information

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Specialist Centres


Adult Centres


Cambridge University Hospital NHS Foundation –http://www.cuh.org.uk/addenbrookes/services/clinical/lysosomal/lysosomal_index.html


National Hospital for Neurology & Neurosurgery Charles Dent Metabolic Unit, London –http://www.uclh.org/OurServices/ServiceA-Z/Neuro/META/Pages/Home.aspx


Royal Free Hampstead NHS Trust, The Royal Free LSD Unit, London - https://www.royalfree.nhs.uk/services/services-a-z/lysosomal-storage-disorders/#tab-contact


University Hospital Birmingham NHS Foundation Trust, Queen Elizabeth Hospital, Birmingham - http://www.uhb.nhs.uk/inherited-metabolic-disease.htm


Children Centres


Birmingham Children’s Hospital - http://www.bch.nhs.uk/Rare-diseases


Willink, Manchester - http://www.cmft.nhs.uk/childrens-hospitals/our-services/willink.aspx


Guys Hospital, London - http://www.guysandstthomas.nhs.uk/our-services/childrens/services/inherited-metabolic-diseases/overview.aspx


For Patients

Association for Glycogen Storage Disease UK


Association for Glycogen Storage Disease


British Inherited Metabolic Disease Group


Chartered Physio Society


Children living with Inherited Metabolic Diseases


Fabry Disease Association


Galactosaemia Support Group


Gaucher Association


GOLD – Global Organisation for Lysosomal Diseases


The MPS Society


National Osteoporosis Society


National Society for Phenylketonuria


UK Newborn Screening Programme Centre


Nieman-Pick Disease Group


The Royal Free LSD Unit


The Willink – Biochemical Genetics Unit