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Monday 22 July 2019
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focus group

Research

Patients are given opportunity to be entered on National registry of patients with immunodeficiency(UK-PID database).


In the last few years we enrolled a number of patients in the national 100k genome project as well as NIHR Bioresource-Rare Disease project to identify genetic defects causing immune deficiency.

 

We offer patients the opportunity to take part in patient support groups organised by us e.g. HAE support group, which took place 2 October 2018 which was hosted by Salford Royal Clinical Immunology team with speakers from HAE UK, Clinician presentations and workshops regarding administration of medications.